HELMET HEAD:)
Tuesday, August 25, 2009
Monday, August 10, 2009
Broken
How many times can one persons heart break i wonder? How many times can my heart go through this? Michael had his first full blown paralization today...he couldn't sit up, could really move...just twitch for 3 hours...then a seizure...then another seizure...then he was fine and happy...then a seizure again...and now has really labored breathing...i know Gods hand is in this somewhere im just so tired of hurting...and so tired of watching my son go through this
Wednesday, August 5, 2009
AUGUST!!!!
Hey All!
Guess What? Its August!!! YAY!!! Seriously out of all the seasons Fall is my favorite and August means its on its way!! Im so excited for fall i can almost taste it...no joke, it taste like apple cider and pumpkin spiced Lattes!
So alot has happen in the past few weeks that i need to update you all on. We have been in Seattle alot these past few months and from what the Doctors have to say it looks like it is going to be like that for awhile. We just got back from Seattle Children's last week with mixed news. The doctors there informed us that they did find a few things. Michael's EEG showed that he is having seizures in the frontal right lobe of his brain which affects his motor skills, which explains alot.What we thought were strokes for him are actually the side affects of the seizures,which is partial paralyzation...they don't know if every time will be temporary or if one big seizure will knock him out...NOT A FAN OF THAT! They have an idea on what type of seizures they may be and truth be told im praying that the test will prove their theory wrong because if they are right we are looking at michael losing eyesight and hearing all together. No thank you. Our next step is getting a full sedation MRI,His Retina tested for seizures, a Cardiologist,and genetics. Like i said...we will be living in Seattle with all these doctors appointments. We are thankful to FINALLY be finding some things out but at the same time we are scared and also frustrated with the doctors here in Spokane. It has been TWO YEARS of testing here and they never found any of this...i asked the doctors in Seattle if this is something that just started to show and they said most likely he was born with it and that you have to look hard to find the markings...so sacred heart, next time...LOOK HARDER! GRR! Anywho,Michael is on Keppra for his seizures and the only side affect it seems to have is being HYPERACTIVE!!!! This kid is bouncing off the walls!!! But as long as it helps im okay with getting no sleep lol!
Well i must go, im babysitting a one month old and he just woke up from a nap! Take care all and talk to you later? Oh and PS...is there any craft shows coming up? im kinda antsy to go to one!!!
Guess What? Its August!!! YAY!!! Seriously out of all the seasons Fall is my favorite and August means its on its way!! Im so excited for fall i can almost taste it...no joke, it taste like apple cider and pumpkin spiced Lattes!
So alot has happen in the past few weeks that i need to update you all on. We have been in Seattle alot these past few months and from what the Doctors have to say it looks like it is going to be like that for awhile. We just got back from Seattle Children's last week with mixed news. The doctors there informed us that they did find a few things. Michael's EEG showed that he is having seizures in the frontal right lobe of his brain which affects his motor skills, which explains alot.What we thought were strokes for him are actually the side affects of the seizures,which is partial paralyzation...they don't know if every time will be temporary or if one big seizure will knock him out...NOT A FAN OF THAT! They have an idea on what type of seizures they may be and truth be told im praying that the test will prove their theory wrong because if they are right we are looking at michael losing eyesight and hearing all together. No thank you. Our next step is getting a full sedation MRI,His Retina tested for seizures, a Cardiologist,and genetics. Like i said...we will be living in Seattle with all these doctors appointments. We are thankful to FINALLY be finding some things out but at the same time we are scared and also frustrated with the doctors here in Spokane. It has been TWO YEARS of testing here and they never found any of this...i asked the doctors in Seattle if this is something that just started to show and they said most likely he was born with it and that you have to look hard to find the markings...so sacred heart, next time...LOOK HARDER! GRR! Anywho,Michael is on Keppra for his seizures and the only side affect it seems to have is being HYPERACTIVE!!!! This kid is bouncing off the walls!!! But as long as it helps im okay with getting no sleep lol!
Well i must go, im babysitting a one month old and he just woke up from a nap! Take care all and talk to you later? Oh and PS...is there any craft shows coming up? im kinda antsy to go to one!!!
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