Hey Everyone!
Well its official, i am OBSESSED with the Christmas Season! I love walking into my home with all our Christmas lights on, a Fire burning, and spending the time with my two favorite men! Every night since Thanksgiving, Andy, Michael and I try to watch a Christmas movie together, And so far we have done pretty well! We also decided that if Andy had a chance to be Santa Clause and to move us to the North Pole we would in a heartbeat!!! Just imagine that life!! Anyways we came up with that idea after watching Tim Allen's " Santa Clause" lol. Go figure!
Another good reason for our happy mood is that this month there are NO SCHEDULED hospital visits. Last month was rough on us and we just need the break. Mikee had to be flown to Seattle Childrens Hospital on the 8th of November and we were there for 10 days due to an unexpected hospitalization. His seizures were way out of hand and it was now effecting his heart rate and oxygen. He had numerous testing that included EEG's, MRI's, EKG's, a swallow study, a Spinal Tap, and Genetics... He also had to have a NG feeding tube placed in him because he lost over 5% of his body weight. Once his seizures were able to be better controlled and his Oxygen levels back to normal they released us back home JUST for the holidays. We have to go back the 1st of January. We still have Zero Diagnoses but we honestly have the best team working on him trying to figure things out!
Since we have been home though, Andy and I are making sure that this month is "magical" for Mikee. We are doing as much as we can with him. Baking cookies, seeing Santa, having random dance parties, decorating the house. Basically just spending as much time possible together. I really feel his happiness in all of this and it just makes my heart burst. Even on the "bad days" he has a huge smile on his face pushing through the obstacles!
I hope this season is magical for everyone. I honestly feel like this is going to be the best one yet and im very thankful to God for all of it, because i know it his hand guiding it all!
Merry Christmas everyone!!
